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    GUEST BLOG

    Living with chronic hip and leg pain

    Our guest blogger, aged 32, tells us how she has adapted to day-to-day life after being diagnosed with Avascular Necrosis.

    By KB, March 2023

    I had been having pains in my right leg for some time, but I had put it down to having a demanding job. Then a few months later, I woke up and couldn’t weight-bear. I headed straight to A&E where they gave me an X-ray which revealed that I had avascular necrosis, not only in my right hip but my left also. I had no idea what the condition was, but it was a relief to have a diagnosis after months of discomfort.

    The orthopaedic consultant informed me that avascular necrosis of the hip (sometimes known as osteonecrosis) is a condition where the blood supply to the joint is affected, causing the bone to die. There are different stages of avascular necrosis. If the joint collapses because the bone is dead, then this may cause major mobility issues.

    I was shocked at first, but was reassured during the next appointment when I was told that there were lots of surgical options including a total hip replacement. In the meantime, I was advised to use crutches which enable me to move about more easily. I also attend regular physiotherapy sessions which helps to keep my body conditioned and muscles strong. It also helps prevent stiffness by encouraging me to maintain a range of motion.

    MAKING CHANGES TO MY ROUTINE
    I experience sharp pains, most of the time, in both of my hips as well as aching sensations in my thighs and lower legs as a result of the avascular necrosis. It is relieved somewhat by sitting down, but I have to avoid going up the stairs too often as this can make my symptoms worse.

    My daily routine has been altered since finding out that I had avascular necrosis. I allocate times throughout the day to rest my legs. This is the perfect excuse to put my feet up and watch some daytime television! I bought a recliner chair which is a lot more comfortable and helps me stand up more easily. I also use a bath seat which enables me to get in safely, as I can no longer step into the bath due to the restricted movement in my hips.


    “It was easier for me to use my wheelchair instead of crutches as there was a fair amount of travel involved. I downloaded an app which enabled me to get assistance when boarding and leaving the train.”


    However, although I have had to make changes to my daily routine, I still lead an active social life. Recently, I made a train journey in to London for my friend’s 30th birthday. It was easier for me to use my wheelchair instead of crutches as there was a fair amount of travel involved. I downloaded an app which enabled me to get assistance when boarding and leaving the train. I also checked online that all the station lifts were working before setting out, and was able to enjoy a great weekend thanks to a non-eventful journey.

    I would advise anyone with constant joint pain to seek medical advice from your GP who can then refer you to an orthopaedic specialist. I ignored the aching to the point where my condition progressed but after speaking to the specialist, I have a plan in place in which my pain is managed, and I have upcoming surgery.

    FIND OUT MORE ABOUT AVASCULAR NECROSIS (OSTEONECROSIS):

    https://www.niams.nih.gov/health-topics/osteonecrosis